Online Program

329163
Benefits of Youth Scribe Involvement in Community Based Participatory Research


Monday, November 2, 2015

Matthew Berkley, BS, Strengthening Chicago’s Youth, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL
Kelli Day, BA, Strengthening Chicago’s Youth, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL
Natasha Brown, Kenwood Academy, Chicago, IL
Kortez Brinson, Gary Comer College Prep, Chicago, IL
Deshaun Lamb, Austin Career Education Center, Chicago, IL
Erica Rodriguez, BS, Strengthening Chicago’s Youth, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL
Rebecca Levin, MPH, Strengthening Chicago’s Youth, Ann & Robert H. Lurie Children’s Hospital of Chicago, Chicago, IL
The NIH-funded Community-Academic Collaboration to Prevent Violence in Chicago (CACPVC) builds capacity to address violence in Chicago through Community-Based Participatory Research (CBPR). Human subjects’ protection made inclusion of youth as study subjects impractical. Instead youth serve as research team members—Youth Scribes collect data at CACPVC meetings in 7 different communities, reflecting Chicago's diversity.

Scribes are high school juniors or seniors, with parental consent for scribes under 18. Initial recruitment did not yield enough Scribes. CACPVC partnered with Chicago Scholars, which prepares high school students for college and career success, to recruit highly-motivated youth with research interest.

Scribes attended a CIRTification workshop, human subjects’ protection training designed for community partners. Training was modified to increase interactivity and include note-taking practice—strengthening skills and increasing enthusiasm.

At community meetings, 2-3 Scribes per discussion group record information exchanged by participants under the guidance of the research team leaders and group facilitators. Scribes participate in post-meeting debriefings. Scribes are compensated with gift cards.

Challenges included transportation, scheduling conflicts, and retention. Solutions included providing transit passes and holding community meetings on non-attendance school days. Of 22 Scribes trained, five withdrew with only one communicating the reasons (out-of-city move).

Based on Scribe feedback, Youth Leadership Council (YLC) was created. YLC members participate more actively in community meetings: presenting introduction and project overview, facilitating large group discussion, and moderating panel discussion. YLC also suggested promotional material improvements.

Youth gained research experience and CACPVC improved outreach and discussion. Scribes highlighted areas for improvement and helped resolve issues.

Learning Areas:

Diversity and culture
Public health or related education
Public health or related research
Social and behavioral sciences

Learning Objectives:
Describe the challenges and benefits unique to youth involvement in community based participatory research.

Keyword(s): Youth, Community-Based Partnership & Collaboration

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have worked on various public health projects as a researcher and as a MPH candidate during my studies at the University of Illinois at Chicago- School of Public Health.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.