Online Program

290425
Latinos' willingness to participate in research: A national random survey


Monday, November 4, 2013

Mary A. Garza, PhD, MPH, Department of Behavioral and Community Health, Maryland Center for Health Equity, University of Maryland, School of Public Health, College Park, MD
Sandra C. Quinn, PhD, Department of Family Science, University of Maryland, School of Public Health, College Park, MD
Ruth E. Zambrana, PhD, Department of Women's Studies, University of Maryland, College Park, MD
Kevin H. Kim, PhD, Department of Psychology in Education, University of Pittsburgh, School of Education, Pittsburgh, PA
Erica T. Casper, MA, Maryland Center for Health Equity, University of Maryland, School of Public Health, College Park, MD
James Butler III, DrPH, MEd, Department of Behavioral & Community Health, University of Maryland Center for Health Equity, University of Maryland School of Public Health, College Park, MD
Craig Fryer, DrPH, MPH, Department of Behavioral and Community Health, University of Maryland School of Public Health, College Park, MD
Stephen Thomas, PhD, FAAHB, Department of Health Services Administration, Center for Health Equity, University of Maryland School of Public Health, College Park, MD
Racial/ethnic minority populations are underrepresented in public health and clinical trials research. According to the NIH, “The recruitment and retention of racial/ethnic minorities into clinical trials is a leading challenge confronting clinical researchers and undoubtedly contributes to the persistence of health disparities.” This study focuses on understanding the barriers and facilitators associated with willingness to participate in research. We conducted a random household telephone survey with Latino adults (N=1,264), which 69% self identified as Mexican/Mexican American and the remaining 31% were listed as “Other” category. The “Building Trust Survey,” included valid standardized instruments designed to assess knowledge of research, human subjects' protections, previous participation in research, previous experiences with health care delivery, social support, religiousness, and trust. Preliminary analysis shows that Mexican/Mexican Americans were less likely to have a college education and health insurance compared to “Other” Latino groups (p<.005). Mexican/Mexican Americans also were less likely to have been “Asked” to participate in research compared to “Other” Latino groups (13% vs 21%: p<.001). However, Mexican/Mexican Americans are more likely to participate in future research than “Other” Latino groups (p<.003). Additional analyses are underway, and will include examining nativity and length of stay in the US by willingness to participate in research. We will also examine the heterogeneity of the “Other” Latino groups and their respective association with barriers and facilitators of willingness to participate in research. Findings from this study will inform the design of culturally-tailored interventions to successfully recruit and retain minorities into public health and clinical trials research.

Learning Areas:

Diversity and culture
Ethics, professional and legal requirements
Planning of health education strategies, interventions, and programs
Public health or related laws, regulations, standards, or guidelines
Public health or related research

Learning Objectives:
Describe two barriers and two facilitators influencing willingness to participate in research among Latinos. Identify two motivational factors that may encourage participation in research among Latinos.

Keyword(s): Latino Health, Social Justice

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I am a co-investigator this study titled “Building Trust between Minorities and Researchers.” This research involves assessing the prevailing perceptions, knowledge and attitudes toward participation in biomedical research among Latinos and African Americans. I have also been a principal investigator and co-investigator on numerous federally funded grants. My research activities embrace the full spectrum of the intervention research process—from planning, developing, implementing, and evaluating, to dissemination of research findings – using a community-based approach.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.