Online Program

285948
Parenting stress and depression in diverse families with a child newly diagnosed with autism spectrum disorder


Tuesday, November 5, 2013 : 4:45 p.m. - 5:00 p.m.

Xena Grossman, MS, RD, Division of Developmental and Behavioral Pediatrics, Boston Medical Center, Boston, MA
Stephanie Blenner, MD, Division of Developmental and Behavioral Pediatrics, Boston Medical Center, Boston, MA
Ivys Fernandez, JD, Division of Developmental and Behavioral Pediatrics, Boston Medical Center, Boston, MA
Adriana Giron, BA, Division of Developmental and Behavioral Pediatrics, Boston Medical Center, Boston, MA
Andrea Medeiros, BA, Division of Developmental and Behavioral Pediatrics, Boston Medical Center, Boston, MA
Marilyn Augustyn, MD, Division of Developmental and Behavioral Pediatrics, Boston Medical Center, Boston, MA
Background: It has been reported that parents of young children with Autism Spectrum Disorder (ASD) experience a high prevalence of stress and depression immediately after diagnosis; however this has not been measured in a diverse low-income immigrant population.

Objective: To measure parenting stress and depression among diverse families of children newly diagnosed with ASD.

Methods: Families from an urban inner-city hospital were recruited within a month of their child's diagnosis with ASD to partake in a larger study. 116 parents completed the Parenting Stress Index short form (PSI), the QIDS (Quick Inventory of Depressive Symptomatology), and answered questions regarding demographics and housing stability.

Results: 54% of the sample was non-US born, 71% received public insurance and 20% reported that they were in unstable housing. Immediately after diagnosis, 16% of interviewed parents reported clinically significant levels of parenting stress (PSI &ge 90%ile) and 58% exhibited symptoms of depression (QIDS &ge 5). In univariate logistic regression, parents of children with lower adaptive functioning, based on ABAS composite scores, were significantly more likely to be depressed (p &lt 0.05); ABAS scores were not significantly associated with increased likelihood of clinically significant levels of parenting stress.

Conclusion: In a diverse low-income immigrant population, the incidence of parenting stress and depression in families of children newly diagnosed with ASD is high. Supporting diverse low-income minority families around an ASD diagnosis requires a multi-faceted service and support approach; especially for families with lower functioning children.

Learning Areas:

Assessment of individual and community needs for health education

Learning Objectives:
Describe a unique diverse cohort of families with a child newly diagnosed with Autism Spectrum Disorder Assess parenting stress and depression in diverse families immediately after a new diagnosis of Autism Spectrum Disorder Evaluate the influence of ABAS composite scores on parenting stress and depression

Keyword(s): Children With Special Needs, Depression

Presenting author's disclosure statement:

Qualified on the content I am responsible for because: I have been working on the Family Navigator Study as a Family Navigator since its inception. I have navigated over 37 low income and diverse families with a child recently diagnosed with an ASD. In June 2013 I graduated from the LEND Program at the Shriver Center in Waltham, MA.Among my scientific interests has been the development of accessible resources for Hispanic immigrants with disabilities and their families; specifically focusing on health, education, and entitlements.
Any relevant financial relationships? No

I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines, and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed in my presentation.