Project living ACTS: Living donor transplant education for African American end-stage renal disease patients
Wednesday, November 6, 2013
: 12:30 p.m. - 12:50 p.m.
African Americans (AAs) are overrepresented among those in need of a kidney transplant. Transplantation continues to be the therapy of choice for many AAs with End-Stage Renal Disease. Living donor transplant (LDT) offers numerous advantages over deceased donor transplantation; however, research consistently finds that AAs face significant barriers to LDT stemming from a lack of knowledge of LDT as a viable treatment option, distrust of the health care system, and lack of willingness to discuss LDT with family members. There is a need for culturally-sensitive interventions that addresses such patient-level barriers. Living ACTS (About Choices in Transplantation and Sharing) is a theory-based self-education intervention consisting of a DVD and educational booklet. Using a pre-post experimental research design, participants (N=296) received either Living ACTS or standardly available materials. Main outcomes explored knowledge of LDT, willingness to discuss LDT with family, and perceived benefit of LDT at both immediate and 6-month follow-up. At immediate follow-up, intervention participants demonstrated greater knowledge of LDT as a treatment option (ß=.16, p<.01) and reported greater perceived benefit of LDT (ß =.26, p<.001) than control participants. At 6-month follow-up, intervention participants reported greater willingness to talk to family about LDT (ß =.12, p<.05) than control participants. Living ACTS was successful at improving knowledge and perceived benefit of LDT in the short term. These improvements may have provided a mechanism for increasing willingness to talk to family about LDT over the subsequent 6 months during which time participants may have opportunities to experience family conversations about LDT.
Administer health education strategies, interventions and programs
Describe patient-level barriers to living donor transplant for African American patients with End Stage Renal Disease.
Describe Project Living ACTS.
Assess the extent to which Project Living ACTS contributed to increased knowledge of living donor transplant, willingness to discuss living donor transplant with family, and perceived benefit of living donor transplant among African American patients with End Stage Renal Disease.
Keyword(s): African American, Access to Care
Presenting author's disclosure statement:
Qualified on the content I am responsible for because: I serve as Principal Investigator of the project being presented. In preparation for this role I received training in Social Psychology and Epidemiology, and have had 10 years of federally funded research in this area.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines,
and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed
in my presentation.