Predictors of non-response and non-compliance in African American lupus patients: Findings from the balancing lupus experiences with stress strategies (BLESS) study
Arthritis self-management education has demonstrated significant improvements in health distress, self-reported global health, and activity limitation, with trends toward improvement in self efficacy and mental stress management. Consequently, numerous national agencies have recommended arthritis self-management education to complement medical care. Despite these recommendations, arthritis self-management education has reached only a limited number of people. Compliance is also a persistent problem in standardized programs. As part of the Balancing Lupus Experiences with Stress Strategies (BLESS) Study, a validated psychosocial stress intervention was piloted among a cohort of African American lupus patients participating in an SLE database project at the Medical University of South Carolina (MUSC). Recruitment attempts were made with the 330 database participants who met eligibility requirements for the study. While enrollment was limited to 30 participants (n=15 controls and n=15 intervention), two of the participants assigned to the intervention group did not attend any intervention sessions and several participants did not complete post-intervention questionnaires. Therefore, data were analyzed on 30 participants at baseline, 25 (n=13 controls and n=12 intervention) at post-intervention, and 22 (n=12 controls and n=10 intervention) at four months post-intervention. In an effort to characterize those who fully participated in the study and those who were non-compliant or non-responsive to recruitment attempts, we obtained demographic data from the SLE Clinic Database Project and administered a survey on motivation/barriers, and needs for tertiary disease prevention in African-American Lupus patients. This information will be used to develop and refine future intervention activities.
Administer health education strategies, interventions and programs
Chronic disease management and prevention
Conduct evaluation related to programs, research, and other areas of practice
Diversity and culture
Implementation of health education strategies, interventions and programs
Planning of health education strategies, interventions, and programs
Describe important factors that could predict non-response and non-compliance
List components that should be addressed when assessing patient capacity
Discuss the utility of allowing patients to mold intervention development based on their feedback
Keyword(s): Adherence, Chronic Diseases
Presenting author's disclosure statement:
Qualified on the content I am responsible for because: I am PI of the award that funded this work, and I have been involved in each facet of the project, from study design and independently writing the original funding application. I also lead the writing of all project-specific manuscripts.
Any relevant financial relationships? No
I agree to comply with the American Public Health Association Conflict of Interest and Commercial Support Guidelines,
and to disclose to the participants any off-label or experimental uses of a commercial product or service discussed
in my presentation.