 | The 131st Annual Meeting (November 15-19, 2003) of APHA |
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| The 131st Annual Meeting (November 15-19, 2003) of APHA |
Peter Vietze, PhD1, Sherry Rose, MA, MPH2, and Steve Holburn, PhD1. (1) UCP/NYC, NYS Institute for Basic Research in Developmental Disabilities, 120 East 23rd St, 5th Floor, New York, NY 10010, 212-979-9700, srose@ucpnyc.org, (2) United Cerebral Palsy of New York City, 120 East 23rd Street, 5th Floor, New York, NY 10010
In order to evaluate the effectiveness of a health promotion program for individuals with cerebral palsy and intellectual disability, we sought an already developed assessment instrument. After an extensive literature review we discovered only one that was made for individuals with disabilities. However, while it was useful for individuals with physical disabilities, it was not specifically developed for individuals with mental retardation. It also lacked some features relevant to quality of life, certain health outcomes and self-determination. We therefore set about to develop an inventory that would meet our specific criteria. We adapted instruments from a number of other studies, including the Medical Outcomes Study, and modified the content of some of the items so that it was more relevant for individuals with mental retardation. Our Health and Well Being Inventory included 4 subscales that measured Health, Quality of Life, Emotional Well Being and Health Care Practices . We also developed two alternate forms, a Long Form with 82 items and a Short Form with 20 items. The Short form consisted of key questions plus the Health Care Practices Subscale. The Health Subscale included four sections: General health (7 Qs), Illness (10 Qs) Sleep (3 Qs), and Pain (8 Qs). The Quality of Life Subscale included four sections: Happiness (6 Qs), Empowerment (8 Qs), Relationships (4 Qs), and Choice (7 Qs). The Emotional Well-being Subscale had only 1 section dealing with emotional problems and the Health Care Practices Subscale consisted of 13 questions. Psychometric properties were excellent. Details of the questionnaire and measurement characteristics will be presented.
Learning Objectives:
Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.