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The 130th Annual Meeting of APHA |
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The 130th Annual Meeting of APHA |
Rosalyn Y Beene, MPH, Janice V Bach, MS, and Marcia Radin, MA. Hereditary Disorders Program, Michigan Department of Community Health, 3423 N. Martin Luther King Blvd, 203 BOW, Lansing, MI 48909, 517 335-8887, Beener@michigan.gov
The Michigan Department of Community Health has recently conducted a genetics needs assessment as part of a Health Resources and Services Administration planning grant for state newborn screening efforts and infrastructure development. The goal was to develop a comprehensive state plan for genetic services that defines the priorities of patients and their families, communities, the general public, educators, health and human service providers, through all stages of the life cycle. The objectives were to: 1) conduct a needs assessment to identify available resources including the strengths, weaknesses and gaps in the current genetic service system; and 2) identify available data sources, develop recommendations for integration of existing databases to enhance infrastructure; and identify uses for these data related to disease case-finding for early intervention and evaluation. The needs assessment was based on the Council of Regional Genetics Networks Guidelines for Clinical Genetic Services for the Public’s Health. Methods included a review of pertinent literature, key informant interviews, survey questionnaires, focus group meetings, and expert working groups. The resulting plan will include six core goals with recommended objectives that incorporate the key public health functions of assessment, policy development and assurance.
Learning Objectives:
Keywords: Needs Assessment, Genetics
Presenting author's disclosure statement:
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.