Approximately 750,000 Americans are diagnosed with stroke each year. It is unclear how many lead to disability but more than 1 in 5 result in death. The Healthy People 2010 objective 12-7 calls for a reduction in the number of stroke deaths by 20%. Prospective registry data may strengthen primary and secondary prevention activities for stroke, thus reducing stroke mortality and disability. Information is needed about the logistics, costs, and contents of an effective stroke registry. A systematic review of the published literature was performed to obtain information about established stroke registries in the U.S. and in other developed countries. The protocol for conducting the review was derived from standards set by the Cochrane Stroke Group and the recommendations submitted by the Brain Attack Coalition to Stroke Centers for maintaining a stroke database. Articles were identified via two citation databases and Internet Worldwide Web sites. The bibliographies of retrieved articles were reviewed for additional articles with relevant information about any aspect of a stroke registry. Inclusion criteria for review articles were set a priori. Information has been obtained on 30 stroke registries established in the U.S. and other countries. Results of this review provide experiences from established registries about the management costs, procedures, and types of information collected, stored, and maintained in a stroke registry. Knowledge gained from this systematic review will strengthen efforts to establish scientific data collection systems that provide evidence for public health action to reduce stroke mortality and morbidity.
Learning Objectives: N/A
Presenting author's disclosure statement:
Organization/institution whose products or services will be discussed: None
I do not have any significant financial interest/arrangement or affiliation with any organization/institution whose products or services are being discussed in this session.